{"id":4366,"date":"2024-06-05T15:40:53","date_gmt":"2024-06-05T13:40:53","guid":{"rendered":"http:\/\/blog.lallianse.com\/?p=4366"},"modified":"2024-10-16T11:41:33","modified_gmt":"2024-10-16T09:41:33","slug":"foundation-for-rare-diseases","status":"publish","type":"post","link":"https:\/\/blog.lallianse.com\/index.php\/en\/foundation-for-rare-diseases\/","title":{"rendered":"Foundation for Rare Diseases x LallianSe"},"content":{"rendered":"\n<h2 class=\"wp-block-heading has-text-color has-link-color has-medium-font-size wp-elements-9f26bba1fbd39834e426d49378148b9d\" style=\"color:#d1b04c\"><strong>June 2024<\/strong><\/h2>\n\n\n\n<p class=\"has-text-align-justify has-text-color has-link-color wp-elements-9c3eea3771a730e3e9f5d1b9406e4f05\" style=\"color:#546a7b\">Remember, a few weeks ago we announced the renewal of our <strong>#collaboration<\/strong> with the <a href=\"https:\/\/www.linkedin.com\/company\/11090258\/admin\/feed\/posts\/#\" target=\"_blank\" rel=\"noreferrer noopener\">Rare Diseases Foundation<\/a>, das part of the co-design workshops in e-health &amp; rare diseases. <a href=\"https:\/\/www.linkedin.com\/company\/11090258\/admin\/feed\/posts\/#\" target=\"_blank\" rel=\"noreferrer noopener\">Julie Rachline<\/a> was able to contribute her #expertise to the \u2018SCLER-AIME\u2019 project, named winner this year.<\/p>\n\n\n\n<p class=\"has-text-align-justify has-text-color has-link-color wp-elements-0aaa2a8a7e2b73a03883bc6003e56039\" style=\"color:#546a7b\">The opportunity for us to take stock of our partnership. For what ?!<\/p>\n\n\n\n<p class=\"has-text-align-justify has-text-color has-link-color wp-elements-27a6105d4d4addb79d125bac41cd5bc2\" style=\"color:#546a7b\">\ud83c\udfaf To align our objectives and values, our efforts are guided by a shared vision: offering concrete and sustainable solutions to the complex challenges posed by <strong>#rarediseases<\/strong>.<\/p>\n\n\n\n<p class=\"has-text-align-justify has-text-color has-link-color wp-elements-dfc3e906fed1e915b4bd59b28161c9b0\" style=\"color:#546a7b\">\ud83d\ude80 To prepare for the future together, anticipate future challenges and issues to come and enable better health for as many people as possible.<\/p>\n\n\n\n<p class=\"has-text-align-justify has-text-color has-link-color wp-elements-d320a0e5976587820d4cd1738e203b4a\" style=\"color:#546a7b\">Find the cross <strong>#ITW<\/strong>  between <a href=\"https:\/\/www.linkedin.com\/company\/11090258\/admin\/feed\/posts\/#\" target=\"_blank\" rel=\"noreferrer noopener\">Julie<\/a> and <a href=\"https:\/\/www.linkedin.com\/company\/11090258\/admin\/feed\/posts\/#\" target=\"_blank\" rel=\"noreferrer noopener\">pierre espinoza<\/a> below:<\/p>\n\n\n\n<figure class=\"wp-block-embed is-type-video is-provider-youtube wp-block-embed-youtube wp-embed-aspect-16-9 wp-has-aspect-ratio\"><div class=\"wp-block-embed__wrapper\">\n<iframe loading=\"lazy\" title=\"@Fondationmaladiesrares  x LallianSe (version longue)\" width=\"840\" height=\"473\" src=\"https:\/\/www.youtube.com\/embed\/_svvm3q8l8U?list=PLCmrxoC_xfLlpb4SnHis3OmWW8qALahfT\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen><\/iframe>\n<\/div><\/figure>\n\n\n\n<p><\/p>\n\n\n\n<p class=\"has-text-color has-link-color has-medium-font-size wp-elements-d9cb119fb32679ae6db38b433e8a79cf\" style=\"color:#546a7b\"><strong>Short version available here<\/strong>:<\/p>\n\n\n\n<figure class=\"wp-block-embed is-type-video is-provider-youtube wp-block-embed-youtube wp-embed-aspect-16-9 wp-has-aspect-ratio\"><div class=\"wp-block-embed__wrapper\">\n<iframe loading=\"lazy\" title=\"@Fondation Maladies Rares x LallianSe version courte\" width=\"840\" height=\"473\" src=\"https:\/\/www.youtube.com\/embed\/D5MCjg3WpWY?list=PLCmrxoC_xfLlpb4SnHis3OmWW8qALahfT\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen><\/iframe>\n<\/div><\/figure>\n\n\n\n<h2 class=\"wp-block-heading has-text-color has-link-color has-medium-font-size wp-elements-00d018c0594b31bcfeb39610ac1331a6\" style=\"color:#d1b04c\"><strong>April 2024<\/strong><\/h2>\n\n\n\n<p class=\"has-text-align-justify has-text-color has-link-color wp-elements-ad250ff3fb4e26ffd0c59053b7d418f9\" style=\"color:#546a7b\">For the 3rd consecutive year, <a href=\"https:\/\/www.linkedin.com\/in\/ACoAAAECmSgBhm8ircL_TCzbzIkb0FtQKasJau0\">Julie<\/a> contributed to the co-design workshops in e-health &amp; rares diseases organized by the Rare Diseases Foundation. <br><br>At <a href=\"https:\/\/www.linkedin.com\/feed\/hashtag\/?keywords=lallianse&amp;highlightedUpdateUrns=urn%3Ali%3Aactivity%3A7186029372259115010\">#LallianSe<\/a>, our #experience in constructing investment theses allows us to highlight the most relevant dimensions and milestones of each project, thus providing necessary insight and value creation for investors.<br><br>We are delighted to see the &lsquo;SCLER-AIME&rsquo; project led by <a href=\"https:\/\/www.linkedin.com\/in\/ACoAAAoYOfcB-HWpwDsMTxN0OH5CoMIdh7ypuc8\">Clo\u00e9 Comarmond<\/a>, internist at the Lariboisi\u00e8re hospital of the <a href=\"https:\/\/www.linkedin.com\/feed\/hashtag\/?keywords=aphp&amp;highlightedUpdateUrns=urn%3Ali%3Aactivity%3A7186029372259115010\">#APHP<\/a> designated #winner with support of \u20ac5,000 from the participants alongside <a href=\"https:\/\/www.linkedin.com\/in\/ACoAAAECmSgBhm8ircL_TCzbzIkb0FtQKasJau0\">Julie Rachline<\/a>&nbsp;: <a href=\"https:\/\/www.linkedin.com\/in\/ACoAAADiX0ABhy3EEFiAGqlrCx6ZE9Hx4aOmuMg\">Alice PARNEL<\/a> \u2022 <a href=\"https:\/\/www.linkedin.com\/in\/ACoAAAdFYB8B788DXjZ6Fjpo3g6qkA-0AQ5BJfQ\">Marie-Christine Jaulent<\/a> \u2022 <a href=\"https:\/\/www.linkedin.com\/in\/ACoAAB0fgawBHRu7MpUadDeIBk4fivLEX4bBvXQ\">Elise L.<\/a><\/p>\n\n\n\n<p class=\"has-text-align-justify has-text-color has-link-color wp-elements-4c06089ef068bb68639554e6830e4aff\" style=\"color:#546a7b\">Thanks to the Foundation team for contacting us again: Dr Pierre Espinoza, <a href=\"https:\/\/www.linkedin.com\/in\/ACoAAAcSSFABY4ngRzgJr9i1l30waRRdDf5O4W8\">Ga\u00eblle Dombu Smeets<\/a> &amp; <a href=\"https:\/\/www.linkedin.com\/in\/ACoAAACB9ysBxzkPIc4ccf0uYHiC1HxAh6UF2V8\">Pascale Milani<\/a>.<\/p>\n\n\n\n<p class=\"has-text-align-justify has-text-color has-link-color wp-elements-5025f1972102e9d7a30b1923c2eff603\" style=\"color:#546a7b\">Julie Rachline, <a href=\"https:\/\/www.linkedin.com\/in\/ACoAAAf2SPAB3g9Q7gaFE2KuFVTUOfkwjgR2BK8\">Pascale Maisonneuve<\/a>, <a href=\"https:\/\/www.linkedin.com\/in\/ACoAAB5bOGgBpLozanx74Wti3Ztwn9hNgW-jhJE\">Shahrzad Moradi<\/a> <a href=\"https:\/\/www.linkedin.com\/in\/ACoAADcBe88BHr85UaVbqKZBnouKe2RVAIz5cy4\">Eve Le Bail<\/a> <a href=\"https:\/\/www.linkedin.com\/in\/ACoAACP9xsYBUyOuhoXYHSjocBnANbWURlgyz_4\">Th\u00e9o Pezel<\/a> <a href=\"https:\/\/www.linkedin.com\/in\/ACoAAAd8y4QBGWlEEMC4P1PVHGWNPdGH7McMnTg\">Damien S\u00e8ne<\/a> <a href=\"https:\/\/www.linkedin.com\/in\/ACoAAACtW9sBP_-_o25W6nmyC03XTx94B0Cu4P4\">St\u00e9phane Mouly<\/a><\/p>\n\n\n\n<iframe loading=\"lazy\" src=\"https:\/\/www.linkedin.com\/embed\/feed\/update\/urn:li:share:7185575650135613441\" height=\"864\" width=\"504\" frameborder=\"0\" allowfullscreen=\"\" title=\"Post int\u00e9gr\u00e9\"><\/iframe>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h2 class=\"wp-block-heading has-text-color has-link-color has-medium-font-size wp-elements-5547855e536f19538e1d0ad8f8e81ad5\" style=\"color:#d1b04c\"><strong>April 202<\/strong>3<\/h2>\n\n\n\n<p class=\"has-text-align-justify has-text-color has-link-color wp-elements-cc5cf0343b0ada8ed3dad9ef54412fb9\" style=\"color:#546a7b\">Remember, we announced to you at the beginning of the year the renewal of our #collaboration with the Rare Diseases Foundation as part of the co-design workshops in e-health &amp; rare diseases for projects in the early study phase.<br><br>What are the objectives of these workshops?<br><br>\ud83c\udfaf\u200a\u200aHelp in the initiation of innovative projects by identifying the necessary resources and key steps for their implementation<br>\ud83c\udfaf Adopt a collaborative approach and stimulate inter-business dialogue from the first ideas <br>\ud83c\udfaf Promote discussions with partners and Experts who master the subject<br><br>Why is this important to us?<br><br>\ud83d\udcaa\u200aTo encourage the emergence of innovations driven by healthcare professionals <br>\ud83d\ude4c\u200aTo support the improvement of the care and life path of people suffering from a rare disease <br>\ud83e\udd1d\u200aTo be consistent with our values and our field initiatives<br><br>It is as a LallianSe Expert that <a href=\"https:\/\/www.linkedin.com\/in\/ACoAAAECmSgBhm8ircL_TCzbzIkb0FtQKasJau0\">Julie Rachline<\/a> was able to bring her #expertise to the \u2018Brain Mouv\u2019 project led by <a href=\"https:\/\/www.linkedin.com\/in\/ACoAACquxVABCrRR0_I8rBpNk096GYXsXxM4cac\">Iris Marollea<\/a>u. <br><br>Thanks to the Experts : <a href=\"https:\/\/www.linkedin.com\/in\/ACoAAAWDNs0B4dHf6dFXOtLH0Z5b3i39aqFXCS8\">Charlotte Douard<\/a>, <a href=\"https:\/\/www.linkedin.com\/in\/ACoAAAutIr4BhlHUniFLH0BRiKzSqxBlvFKGJkc\">Samuel Pouplin<\/a>, <a href=\"https:\/\/www.linkedin.com\/in\/ACoAAB8HMjYBdxJhDlPYWyJfFZr0_k-3baRUrNw\">Ariane David<\/a> &amp; <a href=\"https:\/\/www.linkedin.com\/in\/ACoAAAG2e7MBq3oPdqTmW-U4EZLzTakk9tIbNjY\">Sandrine Hudson Pradier<\/a> as well as the Foundation team: <a href=\"https:\/\/www.linkedin.com\/in\/ACoAADWTr7IBQi2O9UI5990NypYab39SBj29Oi4\">C\u00e9line Bordet<\/a>, <a href=\"https:\/\/www.linkedin.com\/in\/ACoAAAOhGmUBW8jmMJTSCSsZZYwmit274o-VYU0\">pierre espinoza<\/a>, <a href=\"https:\/\/www.linkedin.com\/in\/ACoAAAcSSFABY4ngRzgJr9i1l30waRRdDf5O4W8\">Ga\u00eblle Dombu Smeets<\/a> &amp; <a href=\"https:\/\/www.linkedin.com\/in\/ACoAAACB9ysBxzkPIc4ccf0uYHiC1HxAh6UF2V8\">Pascale Milani<\/a>.<\/p>\n\n\n\n<iframe loading=\"lazy\" src=\"https:\/\/www.linkedin.com\/embed\/feed\/update\/urn:li:ugcPost:7009098807946657792\" height=\"841\" width=\"504\" frameborder=\"0\" allowfullscreen=\"\" title=\"Post int\u00e9gr\u00e9\"><\/iframe>\n","protected":false},"excerpt":{"rendered":"<p>June 2024 Remember, a few weeks ago we announced the renewal of our #collaboration with the Rare Diseases Foundation, das part of the co-design workshops in e-health &amp; rare diseases. Julie Rachline was able to contribute her #expertise to the \u2018SCLER-AIME\u2019 project, named winner this year. The opportunity for us to take stock of our &hellip; <a href=\"https:\/\/blog.lallianse.com\/index.php\/en\/foundation-for-rare-diseases\/\" class=\"more-link\">Continuer la lecture<span class=\"screen-reader-text\"> de &laquo;&nbsp;Foundation for Rare Diseases x LallianSe&nbsp;&raquo;<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"advanced_seo_description":"","jetpack_seo_html_title":"","jetpack_seo_noindex":false,"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"footnotes":"","_jetpack_memberships_contains_paid_content":false},"categories":[246,240],"tags":[],"jetpack_sharing_enabled":true,"jetpack_featured_media_url":"","jetpack-related-posts":[],"_links":{"self":[{"href":"https:\/\/blog.lallianse.com\/index.php\/wp-json\/wp\/v2\/posts\/4366"}],"collection":[{"href":"https:\/\/blog.lallianse.com\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/blog.lallianse.com\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/blog.lallianse.com\/index.php\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/blog.lallianse.com\/index.php\/wp-json\/wp\/v2\/comments?post=4366"}],"version-history":[{"count":3,"href":"https:\/\/blog.lallianse.com\/index.php\/wp-json\/wp\/v2\/posts\/4366\/revisions"}],"predecessor-version":[{"id":4503,"href":"https:\/\/blog.lallianse.com\/index.php\/wp-json\/wp\/v2\/posts\/4366\/revisions\/4503"}],"wp:attachment":[{"href":"https:\/\/blog.lallianse.com\/index.php\/wp-json\/wp\/v2\/media?parent=4366"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/blog.lallianse.com\/index.php\/wp-json\/wp\/v2\/categories?post=4366"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/blog.lallianse.com\/index.php\/wp-json\/wp\/v2\/tags?post=4366"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}